For most PKD sufferers, the most frightening of Polycystic Kidney Disease is
death. But many things along the way can also be a trouble. The following are
the most frightening aspect of some Polycystic Kidney Disease patients. Share
Your Experience
End Stage of Polycystic Kidney Disease Feels Like Death Sentence
I have to take dialysis 4 times a week and I have been put on the waiting
list for kidney transplant. Nausea, vomiting and severe back pain really makes
me sick and I can not sleep well at night. I can not find the meaning of my
life. When I read about “the end stage”, the first thing comes to my mind is
death. I do not know whether end stage of renal failure caused by Polycystic
Kidney Disease is a death sentence.
I am scared about my mother
My mother has PKD, her creatinine level was 400umol/L, and she refuses to
have dialysis, which makes me worried. She seems to be very weak and everyday
she just takes some anti-hypertensive medicines to bring her blood pressure
down. She has told me that she is ready- I don’t know if I am. I pray the lord
gives me the strength to help her through this.
Fear of progression
I get my PKD from my father and he died 5 years ago due to kidney failure. It
bothers me that there is really nothing to stop the progression. Presently, I
know that herbs medicines might be helpful to shrink the cysts. I am absolutely
horrified that some day I will end up just like my father, fighting for every
breath.
Having my children watch me pass away
I am 60 years old with end stage renal disease caused by Polycystic Kidney
Disease. I have four children36, 28, 24,20. I do not want them to miss out their
lives because they are trying to take care of me. I hate the fact that they will
have to watch me pass away. I want to be there for them. It is so much for them
to bear.
Giving my disease to my son
My son gets PKD from me and I do not want him to bear everything that I have
endured. It is not fair for him.
