PKD (Polycystic Kidney Disease) is a horrible disease that numerous cysts are
formed in the kidneys. These cysts will reduce kidney functions and finally go
to kidney failure. The following are some experiences shared by PKD patients.
Hope patients with PKD can be alert to receive treatment in time.
1. I have Polycystic Kidney Disease (PKD) and yes I have had many cysts burst
without provacation. The first sign of this happening was hematuria, blood in
the urine, followed by pain and high temperature. My nephrologist said that I
had so many cysts that draining them was not an option.
2. I too have PKD and have cysts burst without provocation - yes, "flank
pain", I usually wanted a heating pad to help with that, sometimes "cranberry
urine" and I always was told to rest when that happened. I did get a CT scan
once to try and see if they could figure it out where the pain and blood was
coming from but that didn't work. I loved it that he showed it all to me and
explained everything though. He was the greatest at caring about me and
discussing things.
3. If you had the chance to express your feelings about having Polycystic
Kidney Disease, what would you say, and to whom would you say it?
Would you scream at your parent for “giving” you the disease (if you
inherited it?)
For me, the answer is yes to all of the above!
We always say you have to follow your doctor's advice, but perhaps d hearing
others' experiences can make you much more comfortable. You are not alone and
millions of people are with you. If you want to share your experience and know
more advice about PKD (Polycystic Kidney Disease), please contact our online
experts to get more information.
